01 · Map
The research map
Important AS research, organised by the mechanistic threads that connect it. Each paper has a short summary written for non-specialists, plus a one-line note on how it fits.
Ankylosing spondylitis research, openly.
A free catalogue of AS research, paired with an anonymous patient registry. So people can see what the science says, and how AS actually shows up across the community.
22 papers on the map Just getting started Connecting the threads of research
02 · Registry
The patient registry
An anonymous form that asks how AS shows up for you. Answers build a public picture of how the disease behaves across the community. No name, no email, nothing that identifies you.
03 · Contribute
Community contributions
Found a paper that belongs on the map? Send the link. Patients catch papers researchers miss. Researchers catch papers patients can’t access. Every submission is read and reviewed by the maintainer.
Why this exists
AS affects roughly one in two hundred people. Despite that, the average gap between first symptoms and a formal diagnosis is eight to ten years. The research is moving fast, gut microbiome, JAK inhibitors, new genetics, cell therapy, immune cell biology, and most of it is locked behind paywalls and jargon. inflamed.community exists to make this research findable for people who don’t have a rheumatologist on speed dial, and to put the experience of people actually living with the disease into the public dataset that researchers will eventually read.
What this is not
This site does not give medical advice. It will not tell you which drug is best for you. It will not interpret your scans or your blood results. The dashboard shows community patterns, not personal answers. The research map is for orientation, not for prescribing. If you are trying to make a treatment decision, the right person is your rheumatologist, with your case in front of them.
Hear when something new lands
Drop your email and you’ll hear from us when there’s something meaningful, a batch of new papers on the map, a new dashboard panel, a feature you’ve asked for. Low volume. One-click unsubscribe in every email. No marketing.
A small ask
If the platform is useful to you and you’d like to help keep it going:
Support inflamed.community on Buy Me a Coffee →
If you can’t or don’t want to, nothing changes. The platform stays free, and you don’t get less of it.