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About you and your AS

This form takes about 5 to 12 minutes depending on how much you choose to share. We don’t ask for your name, email, or anything that identifies you. Every question has a “Not sure” or “Prefer not to say” option. Skip anything you don’t want to answer.

Your responses join others to build a public picture of how AS shows up across the community. The dashboard updates from this data. No individual response is ever published.

You can read our privacy approach in detail at /privacy.

Section 1 of 4

About you

Five quick questions to start. None of these identify you.

How old are you?

We ask in age bands rather than exact age, so individual responses can’t be picked out.

Which country do you live in?

Country only. We don’t collect city, state, or postcode.

What sex were you assigned at birth?

AS used to be thought of as a male-dominant disease. We now know female AS is often missed or diagnosed late. Your answer helps us see who actually has it, not who gets diagnosed quickly.

What year were you formally diagnosed with AS or AxSpA?

ankylosing spondylitis or axial spondyloarthritis

If you’re still in the diagnostic process, that’s also useful information.

How long ago did your symptoms first start?

This may be longer than the time since your diagnosis. The gap between first symptoms and diagnosis is often years, that’s one of the things this dataset is trying to make visible.